Health Literacy and Qualitative Research: Bridging Socio-Cultural Factors, Technology, and Policy

Authors

  • Djembor Sugeng Walujo Institut Ilmu Kesehatan Bhakti Wiyata Kediri

DOI:

https://doi.org/10.61194/jhlqr.v5i2.871

Keywords:

Health Literacy, Qualitative Research, Socio-Cultural Factors, Digital Health, Participatory Methods, Global Health Policy, Vulnerable Populations

Abstract

Health literacy, defined as the ability to access, comprehend, evaluate, and apply health information, has emerged as a vital determinant of health outcomes. This narrative review aimed to explore how qualitative methodologies contribute to understanding health literacy. Specifically, it sought (1) to examine how qualitative methods capture the lived experiences shaping health literacy, (2) to analyze the role of socio-cultural and technological factors, and (3) to identify methodological gaps and innovations. A total of 58 peer-reviewed studies were included in this review. Inclusion criteria focused on English-language, peer-reviewed studies published within the last decade, with an emphasis on vulnerable populations. Findings reveal that in-depth interviews, focus group discussions, thematic analysis, and photovoice are widely used to capture the lived experiences and social contexts that shape health literacy. Results highlight the strong influence of socio-cultural norms, traditional practices, and social support networks, while digital innovations such as mobile health tools and online platforms offer promising but unevenly distributed benefits. Challenges persist, including methodological limitations, underrepresentation of vulnerable populations, and systemic barriers such as social inequality, weak infrastructure, and limited education. The discussion emphasizes the importance of participatory, community-based interventions, culturally sensitive communication, and equitable integration of digital technologies. Future research should prioritize longitudinal and cross-contextual studies to address gaps and evaluate long-term outcomes. Overall, qualitative approaches provide indispensable insights into health literacy and can guide the development of policies and interventions that are contextually relevant and globally applicable.

References

Abay, S., Addissie, A., Davey, G., Farsides, B., & Addissie, T. (2016). Rapid ethical assessment on informed consent content and procedure in hintalo-wajirat, northern ethiopia: a qualitative study. Plos One, 11(6), e0157056. https://doi.org/10.1371/journal.pone.0157056

Aboye, G., Simegn, G., & Aerts, J. (2024). Assessment of the barriers and enablers of the use of mhealth systems in sub-saharan africa according to the perceptions of patients, physicians, and health care executives in ethiopia: qualitative study. Journal of Medical Internet Research, 26, e50337. https://doi.org/10.2196/50337

Aiyub, I., Jannah, S., Marthoenis, M., Abdullah, A., & Sofyan, H. (2023). Peer stigma, consequences, and anti-stigma strategies in adolescents with mental disorders: a qualitative investigation. Journal of Public Mental Health, 22(2), 60-72. https://doi.org/10.1108/jpmh-09-2022-0095

Albino, S., Tabb, K., Requena, D., Egoavil, M., Piñeros-Leaño, M., Zunt, J., … & García, P. (2014). Perceptions and acceptability of short message services technology to improve treatment adherence amongst tuberculosis patients in peru: a focus group study. Plos One, 9(5), e95770. https://doi.org/10.1371/journal.pone.0095770

Albarqi, H., Aqeli, A., Alsaati, M., Alsaadawi, M., Basubrain, M., & Elessawi, L. (2024). A systematic review on inequalities in access to mental healthcare services in low and middle-income countries. Rawal Medical Journal, 49(1), 209. https://doi.org/10.5455/rmj.20231020114345

Andersen, M., Urstad, K., Larsen, M., Henrichsen, G., Engebretsen, E., Ødemark, J., … & Wahl, A. (2021). Intervening on health literacy by knowledge translation processes in kidney transplantation: a feasibility study. Journal of Renal Care, 48(1), 60-68. https://doi.org/10.1111/jorc.12379

Blake, H., Adams, E., Chaplin, W., Morris, L., Mahmood, I., Taylor, M., … & Coffey, F. (2023). Alcohol prevention in urgent and emergency care (apuec): development and evaluation of workforce digital training on screening, brief intervention, and referral for treatment. International Journal of Environmental Research and Public Health, 20(22), 7028. https://doi.org/10.3390/ijerph20227028

Camargo‐Plazas, P., Robertson, M., Alvarado, B., Paré, G., Costa, I., & Duhn, L. (2023). Diabetes self-management education (dsme) for older persons in western countries: a scoping review. Plos One, 18(8), e0288797. https://doi.org/10.1371/journal.pone.0288797

Cha, E., Shin, M., Smart, M., Jang, H., Lee, J., Joung, K., … & Faulkner, M. (2022). Q-methodology and psychological phenotyping to design patient-centered diabetes education for persons with type 2 diabetes on insulin therapy. The Science of Diabetes Self-Management and Care, 48(2), 98-110. https://doi.org/10.1177/26350106221076035

Choudhry, F., Mani, V., Ming, L., & Khan, T. (2016). Beliefs and perception about mental health issues: a meta-synthesis. Neuropsychiatric Disease and Treatment, 12, 2807-2818. https://doi.org/10.2147/ndt.s111543

Dabiri, F., Hajian, S., Zayeri, F., Teshnizi, S., & Fashami, M. (2024). Improving the reproductive health literacy of couples on the verge of marriage through the focus‐pdca model: mixed‐method study. Health Science Reports, 7(1). https://doi.org/10.1002/hsr2.1809

David, M., & Carignan, M. (2017). Crisis communication adaptation strategies in the mm&a train explosion in lac-mégantic downtown. Corporate Communications: An International Journal, 22(3), 369-382. https://doi.org/10.1108/ccij-02-2016-0022

Dyke, N., Murphy, M., & Drinkwater, E. (2024). “we know what we should be eating, but we don’t always do that.” how and why people eat the way they do: a qualitative study with rural australians. BMC Public Health, 24(1). https://doi.org/10.1186/s12889-024-18432-x

Felix, M., Kitcharoen, P., Le, T., Wei, M., Puspitasari, D., Guo, H., … & Jin, W. (2021). Scoping review: influence of cisgender male and female genders on health literacy of the elderly people. Health & Social Care in the Community, 30(3). https://doi.org/10.1111/hsc.13604

Hawkins, M., Elsworth, G., & Osborne, R. (2019). Questionnaire validation practice: a protocol for a systematic descriptive literature review of health literacy assessments. BMJ Open, 9(10), e030753. https://doi.org/10.1136/bmjopen-2019-030753

Hawkins, M., Elsworth, G., Nolte, S., & Osborne, R. (2021). Validity arguments for patient-reported outcomes: justifying the intended interpretation and use of data. Journal of Patient-Reported Outcomes, 5(1). https://doi.org/10.1186/s41687-021-00332-y

Howe, C., Lewis, B., & Edmondson, S. (2023). Barriers and facilitators to implementing health literacy practices in a pediatric ent clinic. Journal of Nursing Care Quality, 39(2), 106-113. https://doi.org/10.1097/ncq.0000000000000744

Housen, T., Ara, S., Shah, A., Shah, S., Lenglet, A., & Pintaldi, G. (2019). Dua ti dawa ti: understanding psychological distress in the ten districts of the kashmir valley and community mental health service needs. Conflict and Health, 13(1). https://doi.org/10.1186/s13031-019-0243-8

Hurtienne, M., Knowles, J., & Hurtienne, L. (2022). Participant photography for hrd: method, benefits, and ethics. European Journal of Training and Development, 46(7/8), 740-753. https://doi.org/10.1108/ejtd-07-2021-0116

Joaquim, A., Vieira, C., Ribeiro, L., Barros, A., Leão, I., Alvim, C., … & Morais, C. (2024). Head and neck cancer patient journey’s health literacy: a multidisciplinary team perspective. voice study. Supportive Care in Cancer, 32(2). https://doi.org/10.1007/s00520-023-08256-7

Kaneoka, M., & Spence, W. (2019). The cultural context of sexual and reproductive health support: an exploration of sexual and reproductive health literacy among female asylum seekers and refugees in glasgow. International Journal of Migration Health and Social Care, 16(1), 46-64. https://doi.org/10.1108/ijmhsc-01-2019-0002

Khanal, S., Budhathoki, C., & Okan, O. (2023). Improving adolescent health literacy through school-based health literacy intervention: a mixed-method study protocol. BMC Public Health, 23(1). https://doi.org/10.1186/s12889-023-15316-4

Leyns, C., Maeseneer, J., & Willems, S. (2018). Using concept mapping to identify policy options and interventions towards people-centred health care services: a multi stakeholders perspective. International Journal for Equity in Health, 17(1). https://doi.org/10.1186/s12939-018-0895-9

Leyns, C., Couvreur, N., Willems, S., & Hecke, A. (2021). Needs and resources of people with type 2 diabetes in peri-urban cochabamba, bolivia: a people-centred perspective. International Journal for Equity in Health, 20(1). https://doi.org/10.1186/s12939-021-01442-1

Machado, A., & Vieira, N. (2020). Use of webqda software on qualitative nursing research: an experience report. Revista Brasileira De Enfermagem, 73(3). https://doi.org/10.1590/0034-7167-2018-0411

Mahmoodabad, S., Vaezi, A., Soltani, T., Nadjarzadeh, A., Namayandeh, S., Soltani, M., … & Fallahzadeh, H. (2020). Identifying the inhibitory factors of dietary salt reduction in women: a qualitative study, yazd, iran. International Journal of Human Rights in Healthcare, 13(5), 485-498. https://doi.org/10.1108/ijhrh-01-2020-0003

McKenna, V., Sixsmith, J., & Barry, M. (2017). The relevance of context in understanding health literacy skills: findings from a qualitative study. Health Expectations, 20(5), 1049-1060. https://doi.org/10.1111/hex.12547

McKenna, V., Sixsmith, J., & Barry, M. (2018). A qualitative study of the development of health literacy capacities of participants attending a community-based cardiovascular health programme. International Journal of Environmental Research and Public Health, 15(6), 1157. https://doi.org/10.3390/ijerph15061157

McMullen, B., Duncanson, K., Schmidt, D., Collins, C., & MacDonald‐Wicks, L. (2023). A critical realist exploration of factors influencing engagement in diabetes prevention programs in rural settings. Australian Journal of Primary Health, 29(5), 510-519. https://doi.org/10.1071/py22256

Moise, R., Chery, M., Wyrick, M., Zizi, F., Seixas, A., & Jean‐Louis, G. (2024). Photovoice for leveraging traditional, complementary, and integrative medicine amongst black adults to improve sleep health and overall health. Frontiers in Public Health, 12. https://doi.org/10.3389/fpubh.2024.1359096

Morrison, J., Akter, K., Jennings, H., Nahar, T., Kuddus, A., Shaha, S., … & Fottrell, E. (2019). Participatory learning and action to address type 2 diabetes in rural bangladesh: a qualitative process evaluation. BMC Endocrine Disorders, 19(1). https://doi.org/10.1186/s12902-019-0447-3

Naef, A., Fischbock, N., Tezcan‐Güntekin, H., & Amelung, V. (2024). Adolescents with type 1 diabetes’ perspectives on digital health interventions to enhance health literacy: a qualitative study. Frontiers in Public Health, 12. https://doi.org/10.3389/fpubh.2024.1340196

Negarandeh, R., Sarkhani, N., & Heydari, M. (2024). Evaluation of cross‐cultural adaptation and validation of the persian version of the health literacy for school‐aged children scale: methodological study. Health Science Reports, 7(2). https://doi.org/10.1002/hsr2.1876

Nguyen, T., Whitehead, L., Saunders, R., & Dermody, G. (2022). Systematic review of perception of barriers and facilitators to chronic disease self‐management among older adults: implications for evidence‐based practice. Worldviews on Evidence-Based Nursing, 19(3), 191-200. https://doi.org/10.1111/wvn.12563

Ochieng, J., & Crist, J. (2020). Social determinants of health and health care delivery: african american women’s t2dm self-management. Clinical Nursing Research, 30(3), 263-272. https://doi.org/10.1177/1054773820916981

Paine, K., Parker, S., Denney‐Wilson, E., Lloyd, J., Randall, S., McNamara, C., … & Harris, M. (2023). In it for the long haul: the complexities of managing overweight in family practice: qualitative thematic analysis from the health eliteracy for prevention in general practice (help-gp) trial. BMC Primary Care, 24(1). https://doi.org/10.1186/s12875-023-01995-w

Riley, K., Burke, K., Dixon, H., Holmes, D., Calero, L., Barton, M., … & Rohlman, D. (2024). Development and outcomes of returning polycyclic aromatic hydrocarbon exposure results in the washington heights, nyc community. Environmental Health Insights, 18. https://doi.org/10.1177/11786302241262604

Rossen, S., Kayser, L., Vibe-Petersen, J., Christensen, J., & Ried‐Larsen, M. (2020). Cancer survivors’ receptiveness to digital technology–supported physical rehabilitation and the implications for design: qualitative study. Journal of Medical Internet Research, 22(8), e15335. https://doi.org/10.2196/15335

Rostamzadeh, A., Stapels, J., Genske, A., Haidl, T., Jünger, S., Seves, M., … & Jessen, F. (2020). Health literacy in individuals at risk for alzheimer's dementia: a systematic review. The Journal of Prevention of Alzheimer’s Disease, 7(1), 47-55. https://doi.org/10.14283/jpad.2019.34

Salim, H., Young, I., Lee, P., Ghazali, S., & Pinnock, H. (2021). Insights into how malaysian adults with limited health literacy self‐manage and live with asthma: a photovoice qualitative study. Health Expectations, 25(1), 163-176. https://doi.org/10.1111/hex.13360

Simkins, J., Breakwell, R., & Kumar, K. (2023). Physiotherapists' views and experiences of health literacy in clinical practice. Musculoskeletal Care, 21(4), 1204-1212. https://doi.org/10.1002/msc.1800

Simpson, P., Guthrie, J., & Butler, T. (2017). Prison health service directors’ views on research priorities and organizational issues in conducting research in prison: outcomes of a national deliberative roundtable. International Journal of Prisoner Health, 13(2), 113-123. https://doi.org/10.1108/ijph-12-2016-0070

Sodi, T., Quarshie, E., Asante, K., Radzilani-Makatu, M., Makgahlela, M., Nkoana, S., … & Mutambara, J. (2022). Mental health literacy of school-going adolescents in sub-saharan africa: a regional systematic review protocol. BMJ Open, 12(9), e063687. https://doi.org/10.1136/bmjopen-2022-063687

Sung, M., He, J., Zhou, Q., Chen, Y., Ji, J., Chen, H., … & Li, Z. (2022). Using an integrated framework to investigate the facilitators and barriers of health information technology implementation in noncommunicable disease management: systematic review. Journal of Medical Internet Research, 24(7), e37338. https://doi.org/10.2196/37338

Tempes, J., Bittlingmayer, U., Bitzer, E., & Himmelsbach, I. (2023). Health literacy of forcibly displaced (migrant) women during the covid-19 pandemic: a grounded theory study. International Journal of Migration Health and Social Care, 19(3/4), 451-469. https://doi.org/10.1108/ijmhsc-08-2022-0088

Valdivia, E., Palomino, M., & García, A. (2023). Active methodologies and curricular sustainability in teacher training. International Journal of Sustainability in Higher Education, 24(6), 1364-1380. https://doi.org/10.1108/ijshe-05-2022-0168

Velardo, S., & Drummond, M. (2019). Qualitative insight into primary school children’s nutrition literacy. Health Education, 119(2), 98-114. https://doi.org/10.1108/he-08-2018-0039

Virlée, J., Riel, A., & Hammedi, W. (2020). Health literacy and its effects on well-being: how vulnerable healthcare service users integrate online resources. Journal of Services Marketing, 34(5), 697-715. https://doi.org/10.1108/jsm-02-2019-0057

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Published

2025-09-30